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Patient Associations

Patient Associations

Genzyme Therapeutics works with and supports the patient associations listed below:

Butterfly

Nature of support:

• Financial support of Patient Information Packs, leaflets and posters

• Financial support to enable development of the website and to run the helpline

Children Living with Metabolic Disease (Climb)

Nature of support:

• Financial support of Patient Conference

Genetic Interest Group (GIG)

Nature of support:

• Financial support to enable the development of the GIG website.

HEART UK

Nature of support:

• Financial support of annual HEART UK Conference.

• Financial support for the rollout of the new FH guidelines in the form of Clinical Workshops and guideline summaries

Jeans for Genes

Nature of support:

• Financial support of Primary and Secondary Education Booklets

• Financial support of Fabry Film

Myeloma UK

Nature of support:

• Genzyme and Myeloma UK have agreed to work together and exchange information on the management of Multiple Myeloma in the UK. There is no financial support currently in place.

National Kidney Foundation

Nature of support:

• Co-financial support for Annual Patient Meeting

The Association of Glycogen Storage Diseases (AGSD)

Nature of support:

• Financial Support of the AGSD Annual Patient Meeting.

• Financial support for a Family Support Officer providing a national point of contact for information and advice for those affected by Pompe disease

The MPS Society

Nature of support:

• Financial support of National and Regional Patient Meetings.

• Financial support of patient surveys.

• Financial support for a Senior Patient Advocacy Worker providing support and advice to MPS1 and Fabry patients

Welsh Kidney Patient Association

Nature of support:

• Financial support of the Annual Patient Conference

Updated January 2009




CONTACT INFORMATION:

Genzyme Therapeutics Ltd,
Genzyme Biosurgery

4620 Kingsgate
Cascade Way
Oxford Business Park South
Oxford
OX4 2SU
Tel: 01865 405200
Fax: 01865 774172

Genzyme Therapeutics Ltd
Genzyme Europe Research

310 Cambridge Science Park
Milton Road
Cambridge
CB4 0WG
Tel: 01223 394000
Fax: 01223 394190

Genzyme Ltd
Genzyme Diagnostics

50 Gibson Drive
Kings Hill
West Malling
Kent
ME19 4AF
Tel: 01732 220022
Fax: 01732 220024

Genzyme Ltd
Haverhill Operations

12 Rookwood Way
Haverhill
Suffolk
CB9 8PU
Tel: 01440 703522
Fax: 01440 716269

Registered Office for Genzyme Therapeutics Ltd
4620 Kingsgate
Cascade Way
Oxford Business Park South
Oxford
OX4 2SU
Company Registration No. 4316333
Registered in England

Registered Office for Genzyme Ltd
37 Hollands Road
Haverhill
Suffolk
CB9 8PU
Company Registration No. 01556886 Registered in England

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